Couple with Brittle Bone Disease Says It’s ‘Taxing’ but ‘Disability Isn't Something to Be Afraid of’ (Exclusive)
The pair were both born with osteogenesis imperfecta type 3 — often called brittle bone disease. The rare genetic bone ...
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These Are The Five Rare Diseases You Did Not Know Existed
It is always good to know about diseases so you can read the signs your body is telling you. However, there exists many ...
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Inozyme plans $75m IPO as it heads for clinic with rare bone diseases drug
as the firm gears up for clinical trials of its lead drug for rare bone diseases. Based in Boston, Massachusetts, the company plans to raise $75 million by offering 5 million shares at a price ...
This internationally recognized NJ doctor is on the frontlines battling rare diseases
A rare disease in the US is one in 1,500, or fewer than 200,000 people, and an ultra-rare disease is one in 50,000 or fewer than than 6,000 people.
Their flesh turns to bone, but a new treatment might help them
That is the predicament of patients with fibrodysplasia ossificans progressiva (FOP) or “Stone Man Syndrome”, a rare ...
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Coimbatore woman fights rare bone disorder, goes global with her paper dolls
While battling a rare bone disease that kept her away from school and social life, she has crafted more than 4,500 unique paper dolls and now runs a successful enterprise - Queenbee Paper Crafts ...
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German bone marrow donor helps Nebraska woman beat rare disease
but she beat her rare disease thanks to a stranger in Germany, who they say is now family. Regina is an aplastic anemia survivor thanks to Achim Krause, a banker from Germany who banked his bone ...