The pair were both born with osteogenesis imperfecta type 3 — often called brittle bone disease. The rare genetic bone ...
It is always good to know about diseases so you can read the signs your body is telling you. However, there exists many ...
Jackson Kalbhenn has been cancer-free for almost a year and is now helping other young people who are facing the rare cancer ...
HPP — also known as soft bone disease — is a rare inherited disorder that causes abnormal development of bones and premature loss of teeth. HPP ranges in severity. Milder cases put affected ...
That has motivated us to find the next step in treating this disease.” HPP — also known as soft bone disease — is a rare inherited disorder that causes abnormal development of bones and premature loss ...
A rare disease in the US is one in 1,500, or fewer than 200,000 people, and an ultra-rare disease is one in 50,000 or fewer than than 6,000 people.
That is the predicament of patients with fibrodysplasia ossificans progressiva (FOP) or “Stone Man Syndrome”, a rare ...
While battling a rare bone disease that kept her away from school and social life, she has crafted more than 4,500 unique paper dolls and now runs a successful enterprise - Queenbee Paper Crafts ...
but she beat her rare disease thanks to a stranger in Germany, who they say is now family. Regina is an aplastic anemia survivor thanks to Achim Krause, a banker from Germany who banked his bone ...