My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

The Cystic Fibrosis Foundation would like to thank New York Giants placekicker Josh Brown and Tommy Bahama for their efforts in supporting the search for a cure for cystic fibrosis. New York Giants ...

On behalf of millions of patients and consumers we represent across the United States who face serious and chronic health conditions, our organizations urge Congress to oppose cuts that will terminate ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community. I never ...

Today 40 non-profit, non-partisan organizations issued a statement in advance of the House Energy and Commerce and Ways and Means Committee markups asking them to stop assaults on healthcare that will ...

Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...

Dear Chair Nosse and Members of the Committee on Behavioral Health and Health Care: On behalf of the nearly 470 people living with cystic fibrosis in Oregon, the Cystic Fibrosis Foundation writes to ...

Dear Chairman Feeney, Chairman Murphy, and Members of the Joint Committee on Financial Services: On behalf of the more than 830 people living with cystic fibrosis in Massachusetts, we write to express ...

Dear Chair Cavanagh and Members of the Committee on Finance, Insurance, and Consumer Protection: On behalf of the people living with cystic fibrosis in Michigan, the Cystic Fibrosis Foundation writes ...