My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

The Cystic Fibrosis Foundation is proud to announce that it has surpassed its goal for the Milestones III: Driven by a Dream major giving campaign, raising more than $200 million to support its ...

I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...

I was labeled as different in school because I was always in the nurse's office, coughing, or eating like a pig. It all started in elementary school and still happens today, even though I am in ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...

Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...

In the maze of self-discovery, one of the most profound and liberating journeys a person can embark upon is coming out. I often find myself educating others and bringing awareness not only when I come ...

Matt is an adult with cystic fibrosis. He is a Minnesota native who graduated from the University of St. Thomas. He runs an online fitness business, The Rallis Regimen, with his brother Mike. He ...