My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

The Cystic Fibrosis Foundation would like to thank New York Giants placekicker Josh Brown and Tommy Bahama for their efforts in supporting the search for a cure for cystic fibrosis. New York Giants ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...

The Cystic Fibrosis Foundation is proud to announce that it has surpassed its goal for the Milestones III: Driven by a Dream major giving campaign, raising more than $200 million to support its ...

Dear Speaker Johnson, Chair Aderholt, Leader Jeffries and Ranking Member DeLauro, We, the undersigned organizations, write to express our deep concern for our nation’s biomedical research institutions ...

BETHESDA, Md. (May 13, 2025) — As Congress considers deep cuts to Medicaid as part of budget reconciliation, the Cystic Fibrosis Foundation issues the following statement: The CF Foundation expresses ...

On behalf of the Cystic Fibrosis Foundation, we submit the following statement for the record expressing our grave concern and strong opposition to the proposed deep cuts to the Medicaid program ...

Today 40 non-profit, non-partisan organizations issued a statement in advance of the House Energy and Commerce and Ways and Means Committee markups asking them to stop assaults on healthcare that will ...

On behalf of the 272 undersigned organizations committed to the health of our nation’s mothers, infants, children, and families, we express our deep concern over the Administration’s recent decision ...

In a letter to Congressional leadership, the Cystic Fibrosis Foundation joined the Partnership for Protecting Coverage coalition in expressing strong opposition to proposed cuts to Medicaid Congress ...