My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.

I started my stride against CF in 1996. My closest cousin, Danny, and I were the same age — we liked the same things, went to the same school, and experienced life side by side. But he was dealt a ...

Dear Chairman Bjorkman and Members of the Committee on Labor and Commerce: On behalf of the people living with cystic fibrosis in Alaska, we write to express our support for SB 133, which makes ...

The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

The U.S. Food and Drug Administration (FDA) today approved the expansion of Trikafta (elexacaftor/tezacaftor/ivacaftor) to people with cystic fibrosis ages 2 and ...

I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...

Holly is a mother to Sophia, who was diagnosed with CF at two weeks old. A graduate of Columbia College, she currently works for her local school district as a custodian and works on her crafting and ...

The Cystic Fibrosis Foundation announced today that it has invested an additional $5 million in BiomX Inc. to support a Phase 2b clinical trial to test the efficacy of bacteriophage (phage) therapy in ...